We are working to save lives of children like Haley.
Batten Disease is a FATAL disease that causes blindness, dementia, hallucinations, seizures, loss of mobility, loss of speech, and loss of life. No family or child should have to endure this kind of suffering. Haley, our inspiration, lost her battle against Batten Disease on January 25, 2022. The Haley's Heroes Foundation wants to ensure no other families feel the emptyiness and pain of losing a child to this Diseease. Let's find a treatment together.